When Aidan learned to walk it came effortlessly...
Talking...
Well let's just say he is a chatterbox...
But potty training...
Potty training is something I want to sleep through...
It is one step forward and two steps back...
Arguments over underwear...
Enemas to keep him from being constipated...
Miralax to soften the stool...
A little boy who is so proud when he is successful...
And broken hearted when he isn't...
We watch as most of his friends start wearing big boy pants...
Yet he is whispering in the most public of places that he needs his diaper changed...
He's too big changing stations...
Yet, if I don't change it...
He will get bleeding sores on his bottom...
When he was a month old and the surgeon explained to us that he would have to have surgery...
I was scared and yet relieved that we could "fix" this...
You can't "fix" Hirschsprung's...
It follows after you like a shadow...
Always lurking...
It is a disease of trial and error...
What works for one child, may not {probably won't} work for another...
And because I like to know what I am dealing with up front...
I wish our doctors would have been completely transparent...
I wish they would have prepared us saying more than just "he may potty train late"...
I know doctors aren't perfect...
And I know the same doctors I criticize saved my son's life...
This disease will continue to make guest posts on this blog...
But just like my son...
Hirschsprung's is simply a piece of the puzzle...
And for each day I blog about this disease...
I will spend many more blogging about Aidan Kale's sense of humor, his quirky mannerisms, his loving spirit...
So it might be rough times now...
But they won't always be...
And I wouldn't have my precious little boy any other way...